Journal article

Factors affecting the quality of life for people living with albinism in Botswana.


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Publication Details

Author list: Ellen E Anshelevich, Karen I Mosojane, Lorato Kenosi, Oathokwa Nkomazana, Victoria L Williams

Publisher: Science Direct

Publication year: 2021

Journal: Dermatologic Clinics

Journal acronym: Dematol Clin

Volume number: 39

Issue number: 1

Start page: 129

End page: 145

Number of pages: 17



People with albinism (PWA) in Africa suffer many challenges, including higher risk of skin cancers and deeply embedded stigma. We conducted interviews with PWA to determine factors influencing their quality of life (QOL) in Botswana. Physical concerns expressed included skin/eye health issues and limited access to health care. Psychosocial concerns included stigma/discrimination and myths/superstitions. Environmental concerns included barriers to personal development of education and employment, safety concerns, financial insecurity, and disability rights issues. Pervasive difficulty in obtaining equal rights to physical, psychosocial, and environmental health affected QOL. Education around albinism and disability rights are needed to improve QOL for PWA.


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Last updated on 2022-29-11 at 11:34